Just a short compilation of helpful research I’ll be using in my journey to better care. Feel free to print, share, reference, link to, or whatever. None of this is my own information. All authors are cited in the original documents. This is definitely subject to change as I find more helpful articles relating to my medical issues.

Online Articles:

What is Craniocervical Instability? (from The Pain Relief Foundation)

Syndrome of occipitoatlantoaxial hypermobility, cranial settling, and chiari malformation type I in patients with hereditary disorders of connective tissue (from PubMed)

Neurological manifestations of Ehlers-Danlos syndrome(s): A review (from PubMed)

Connective tissue, Ehlers-Danlos syndrome(s), and head and cervical pain (from PubMed)

Positional Magnetic Resonance Imaging for People With Ehlers-Danlos Syndrome or Suspected Craniovertebral or Cervical Spine Abnormalities: An Evidence-Based Analysis (from PubMed)

Spontaneous Spinal Cerebrospinal Fluid Leaks and Intracranial Hypotension (from JAMA Network)

PDFs:

Acquired Chiari I malformation secondary to spontaneous spinal cerebrospinal fluid leakage and chronic intracranial hypotension syndrome in seven cases

Cranio-cervical Instability in Patients with Hypermobility Connective
Disorders

Ehlers Danlos Syndrome and Disability Benefits from the Social Security Administration

Recommendations for anesthesia and perioperative management in patients with Ehlers-Danlos syndrome(s)

WHAT TYPES OF PAIN AFFECT THOSE WITH EHLERS-DANLOS? (PART ONE)

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